The Transatlantic Fed

Chapter 14. The Transatlantic Fed


from individual stories of disability to collective action


Brendan Abel, Melodie Clarke and Stephen Parks






Since all men are ‘political beings,’ all are also legislators … Every man, in as much as he is active, i.e. living, contributes to modifying the social environment in which he develops (to modifying certain of its characteristics or preserving others); in other words, he tends to establish ‘norms,’ rules of living or behaviour. One’s circle of activity may be greater or smaller, one’s awareness of one’s own perceptions may be greater or smaller; furthermore, the representation to power may be greater or smaller, and will be put into practice to a greater or lesser extent in its normative systemic expression by the ‘represented’.

Antonio Gramsci 1971, p. 265

At the outset, we should note that none of us is an occupational therapist. In taking on the work described below, we were probably more animated by the idea of exploring our role as ‘political beings’ within a university community. More than therapists, we saw ourselves as would-be legislators attempting to ameliorate or modify what we felt to be the obstacles facing those from a working-class background at an exclusive United States campus. This focus on our identity as part of a collective working-class community gradually shaped a collaborative writing project that interacted with policy debates around disability and education. Before that story can be told, however, some background is necessary.

The Transatlantic Fed is a partnership between the Federation of Worker Writers and Community Publishers (FWWCP) and the Writing Program, Syracuse University. At the outset, the Transatlantic Fed was a listserv discussion group bringing together a Syracuse University Civic Writing class and FWWCP members charged with the task of addressing a seemingly straightforward question: Does the working class in Great Britain and the USA share similar experiences? This was not an innocent question to ask in the context of Syracuse University, an educational institution where university fees can average over $40 000 a year and where, not surprisingly, the number of working-class students is relatively small. Indeed, Parks developed the connection with the FWWCP as a means to provide working-class students at Syracuse University with an entry point into a tradition of writing and analysing working-class experience for the knowledge and insights it can provide. An additional goal for Parks was also to provide a forum for more privileged students to learn about the reality of working-class life.


This sharing of individual stories, however, soon led to larger questions of what actions could possibly be taken. For instance, in a response to a participant writing about her illness, Anne wrote:



It was interesting to read of your illness. I suffer from systemic lupus erythematosus … basically my body is allergic to itself and this is manifested in short-term memory recall, which I find very frustrating. At present I’m fighting to get my working hours put back on to the 09.00–17.00 basis and have presented both therapist and doctor’s lines – to no avail sometimes, so maybe we could do something on these lines.


A fundamental tenet of this idea is the belief that we are always already participating in collective aspects of public life. Even our most immediate or personal actions work to reaffirm or to resist normative systemic expression. For instance, the sheer act of the students bringing working-class experience and writing into an institution that could be viewed as structured against such opportunities was a legislative moment – it affected in a small way who could speak and what could be said. More broadly, it could be argued that such work was an attempt to enact an emerging collective belief among participants that such personal issues needed to be systemically represented within the legislative framework of the university. For Gramsci (1971), then, the initial work of legislators is to elaborate this emergent collective sensibility across the locations where one has legislative authority, moving to create spaces where a new definition of normative representation and behaviour exists. Later, the work becomes that of further articulating those spaces within the system, ultimately creating a new ‘governance’ structure in a way that has affinities with de Certeau’s (1984) concepts of tactics and strategies.

Within the context of using personal writing about class/disability as a means to alter the ‘normative representations’ and governance structures of a variety of institutions, the work of the Transatlantic Fed began to take on more meaning. The writing produced became an attempt to enact a collective role as legislators to affect local change within discussions occurring at Syracuse University and the FWWCP (see also Chapter 3 and Chapter 6). To track these changes at Syracuse University, we want to examine the particular trajectory of one participant, Melodie Clarke, whose work is chosen not for its individual merits but for how it speaks to the collective effort of the Transatlantic Fed.

As with many of the Transatlantic Fed members, Clarke’s initial posts to the group focused on the particulars of her situation:



Our discussions about class, education and disability made me become interested about what is being done on our campus to address these issues. I had a wonderful experience with a particular event that I would like to share with you.

At Syracuse University they’re doing a program called Writing on the Wall. In this program they are having 130 concrete blocks painted with symbols or words that symbolize oppression. They can be painted by students and Faculty … I painted a block with the word disability and a small flower. They had us fill out a card explaining why you chose the word that you did or what the symbol you used meant. I wrote that people don’t see me, they see the disability and don’t look past that to see me. I feel like I have to prove myself to become visible again.

I’ve been thinking about this subject for a couple of days now. I am using a walker (I’m being weaned off of it to using a cane) and wear braces on both hands. I feel that when I meet people they look at my disabilities and don’t look farther to see me as a person. I am a person beyond the disabilities. I have dreams, feelings and aspirations like everyone else. I feel that people are putting me in a box and it gets harder and harder to push or break my way through.

It even goes on at the University level, where just because you have a ramp on the outside of a building does not make it handicap-accessible. I get so frustrated at times because I can’t get downstairs to the Bursar’s Office or upstairs to Financial Aid. I also get frustrated by people who treat me like I’m not there or they have prejudged me based on my appearance or disability. Frustration eventually turns into depression and sadness. I keep pushing against the box wall to get people to see me for who I am, not my disability, not my disease (sarcoidosis), not because they feel sorry for me and not treating me really different from every other student.

In response, Nick Pollard wrote back stating:

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Jun 4, 2016 | Posted by in MANUAL THERAPIST | Comments Off on The Transatlantic Fed

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