Survey of Patient-Reported Questionnaires Using the ICF as a Reference: An Illustration Using the ICF Core Set for Vocational Rehabilitation



Fig. 20.1
International classification of functioning, disability and health (ICF) [11]

























ICF component

d activities and participation

Chapter

d8 Major life areas

Second-level category

d850 Remunerative employment

Third-level category

d8500 Self-employment
 
d8501 Part-time employment

d8502 Full-time employment


The ICF has 1,424 ICF categories, which make the utility of those categories not feasible. Hence, a brief and a comprehensive ICF Core Set (of domains) has been specifically developed for VR [12]. An ICF Core Set is a short list of ICF categories. The comprehensive version is lengthy, contains 90 categories (for a full list, see http://​www.​icf-research-branch.​org). and is intended for multidisciplinary assessment, while the Brief ICF Core Set for VR consisting of 13 ICF categories (Table 20.1) serves as a minimum data set (i.e. list of functioning domains) that are to be reported in clinical studies or single-discipline clinical encounter within the context of VR to describe the impact of the disease on functioning [13]. The brief version can serve as a uniform data set because it identifies the essential issues experienced by patients in VR, which should be assessed, measured and evaluated.


Table 20.1
Title and description of ICF categories in the brief Core Set for Vocational Rehabilitation (total = 13 categories) [12]
































































ICF code

Title

Definition

d155

Acquiring skills

Developing basic and complex competencies in integrated sets of actions or tasks so as to initiate and follow through with the acquisition of a skill, such as manipulating tools or playing games like chess

d240

Handling stress and other psychological demands

Carrying out simple or complex and coordinated actions to manage and control the psychological demands required to carry out tasks demanding significant responsibilities and involving stress, distraction or crises, such as driving a vehicle during heavy traffic or taking care of many children

d720

Complex interpersonal interactions

Maintaining and managing interactions with other people, in a contextually and socially appropriate manner, such as by regulating emotions and impulses, controlling verbal and physical aggression, acting independently in social interactions and acting in accordance with social rules and conventions

d845

Acquiring, keeping and terminating a job

Seeking, finding and choosing employment; being hired and accepting employment; maintaining and advancing through a job, trade, occupation or profession; and leaving a job in an appropriate manner

d850

Remunerative employment

Engaging in all aspects of work, as an occupation, trade, profession or other form of employment, for payment, as an employee, full or part time or self-employed, such as seeking employment and getting a job, doing the required tasks of the job, attending work on time as required, supervising other workers or being supervised and performing required tasks alone or in groups

d855

Non-remunerative employment

Engaging in all aspects of work in which pay is not provided, full time or part time, including organised work activities, doing the required tasks of the job, attending work on time as required, supervising other workers or being supervised and performing required tasks alone or in groups, such as volunteer work, charity work, working for a community or religious group without remuneration and working around the home without remuneration

e310

Immediate family

Individuals related by birth, marriage or other relationship recognised by the culture as immediate family, such as spouses, partners, parents, siblings, children, foster parents, adoptive parents and grandparents

e330

People in positions of authority

Individuals who have decision-making responsibilities for others and who have socially defined influence or power based on their social, economic, cultural or religious roles in society, such as teachers, employers, supervisors, religious leaders, substitute decision-makers, guardians or trustees

e580

Health services, systems and policies

Services, systems and policies for preventing and treating health problems, providing medical rehabilitation and promoting a healthy lifestyle

e590

Labour and employment services, systems and policies

Services, systems and policies related to finding suitable work for persons who are unemployed or looking for different work or to support individuals already employed who are seeking promotion

b130

Energy and drive functions

General mental functions of physiological and psychological mechanisms that cause the individual to move towards satisfying specific needs and general goals in a persistent manner

b164

Higher-level cognitive functions

Specific mental functions especially dependent on the frontal lobes of the brain, including complex goal-directed behaviours such as decision-making, abstract thinking, planning and carrying out plans, mental flexibility and deciding which behaviours are appropriate under what circumstances; often called executive functions

b455

Exercise tolerance functions

Functions related to respiratory and cardiovascular capacity as required for enduring physical exertion

The ICF Core Set essentially provides “what” to measure. “How” to measure an ICF category is possible by using a standard questionnaire, for example.

Hence, as part of the process in developing the ICF Core Set for VR, a systematic review was performed with linking of outcomes (including questionnaires) to the ICF [14]. The process basically involved linking of constructs found in the questionnaire items to the best fitting ICF category. This chapter will focus on patient-reported questionnaires (PRQ). Such questionnaires are commonly used in various fields of medicine and in VR [14] and are especially helpful when measuring constructs or latent variables. By providing a list of questionnaires that can assess the domains in the ICF Core Set, VR practitioners can now integrate the use of the ICF Core Set in their daily clinical practice by using those questionnaires.

The objective of this chapter is to present the PRQs that were linked to the 13 ICF categories of the brief version of the ICF Core Set for Vocational Rehabilitation. This chapter can guide clinicians and researchers in choosing which PRQ measure to use to operationalise the ICF in VR.



20.2 Methods



20.2.1 Overview of Original Study


The current study is based on a previous systematic literature review (original study), which linked concepts found in measures and questionnaires to the specific ICF categories [14]. That review utilised the following search terms and keywords, “Vocational rehabilitation”, “Return to work”, “Occupational rehab*”, “Work rehab*”, “Work reintegration”, “Job rehab*”, “Job reentry”, “Employ* rehab*” and “Employ* reentry”, in multiple databases: CINAHL, PsycINFO, Medline, Global Health, Vocation and Career Collection.


20.2.2 Database of Questionnaire Items


A database was created in an Excel spreadsheet (Microsoft Corporation 2007, Redmond WA), showing the items of each questionnaire, which have been linked to the ICF categories in the VR Brief ICF Core Set. Definition for each ICF category is provided in Table 20.1. Only standard patient-reported questionnaires with items linked to the VR Brief Core Set were surveyed.


20.2.3 Survey of Questionnaires


An inventory of PRQs corresponding to each ICF category included in the ICF Core Set for VR was developed.


20.3 Results



20.3.1 Item Database


Based on the systematic review, 229 articles were selected. From these, 650 measures were identified (154 were questionnaires and clinical tests) [14]. Of those measures, there were 68 PRQs.

A database was created showing the items of all the questionnaires that addressed the ICF categories of the Brief ICF Core Set for VR. The database shows a wide range of questionnaires covering domains on mental health to physical health. Table 20.2 shows the acronyms and the corresponding full name of each PRQ. Table 20.3 contains a list of PRQs where concepts of a particular ICF category were found.


Table 20.2
Acronyms and names of PRQs. Some PRQs are copyrighted and require permission before they can be used. Make sure to check with individual developers






















































































































































































































Acronym

Name of questionnaire

4DSQ

Four-Dimensional Symptom Questionnaire [15]

ADS

Activities Discomfort Scale [16]

ASI

Addiction Severity Index [17]

BDI

Beck Depression Inventory [18]

BIPQ

Brief Illness Perception Questionnaire [19]

BORRTI

Bell Objects Relations and Reality Testing Inventory [20]

BQ

Baecke Questionnaire (with work, sport and leisure time index) [21]

CAN-E

Camberwell Assessment of Needs-European short version [22]

CES-D

20-item Center for Epidemiologic Studies Depression scale [23]

COPM

Canadian Occupational Performance Measure [24]

CSQ-8

Client Satisfaction Questionnaire-8 [25]

CWPP

Work Personality Profile [26]

DASS

Depression Anxiety and Stress Scale [27]

DMQ

Dutch Musculoskeletal Questionnaire [28]

EQ- 5D

Euro QOL [29]

ES

Empowerment Scale [30]

FQOLS

Flanagan Quality of Life Scale [31]

GAS

Goal Attainment Scale [32]

GRWA

Graded Reduced Work Ability Scale [33]

GSES

General Self-Efficacy Scale [34]

HADS

Hospital Anxiety and Depression Scale [35]

HAQ-II

Revised Helping Alliance Questionnaire [36]

HAT-QOL

Holmes Quality of Life [37]

HDRS

Hamilton Depression Rating Scale [38]

HS

Hope Scale [39]

HSCL

Hopkins Symptoms Check List [40]

ISEL

Interpersonal Support Evaluation List [41]

JCQ

Job Content Questionnaire [42]

JSQ

Cooper Job Stress Questionnaire [43]

LBOS

Low Back Outcome Score [44]

LOT-R

Life Orientation Test-Revised [45]

LSI

Life Skills Inventory [46]

MHLC

Multidimensional Health Locus of Control questionnaire (Form A) [47]

MWHLCs

Modified Wallston’s Health Locus of Control [48]

MSQ

Minnesota Satisfaction Questionnaire [49]

MZDI

Modified Zung Depression Index [50]

ODQ

Oswestry Low Back Pain Disability Questionnaire [51]

OMPQ

Örebro Musculoskeletal Pain Questionnaire [52]

OSQOL

Quality of Life Scale [53]

PANSS

Positive and Negative Syndrome Scale [54]

PAR-Q

Physical Activity Readiness questionnaire- revised 2002 [55]

PCS

Pain Catastrophizing Scale [56]

PDI

Pain Disability Index [57]

PDQ

Pain Disability Questionnaire [58]

PSEQ

Pain Self Efficacy Questionnaire [59]

QD

Quick-DASH [60]

QOLQ

Quality of Life Questionnaire [61]

RDQ

Roland-Morris Disability 24 Questionnaire [62]

ROMI

Rating of Medication Influences Scale [63]

RPQ

Rivermead Post Concussion Symptoms Questionnaire [64]

SAS-SR

Social Adjustment Scale – Self Report version [65]

SCISCE

Stages of Change Interview for Seeking Competitive Employment [66]

SERS

Self-Esteem Rating Scale [67]

SF-36

Short Form 36-item health survey [68]

SF-12

Short Form 12-item health survey [69]

SHC

Subjective Health Complaint Inventory [70]

SOC

Sense of Coherence Scale -29 [71]

STAXI

State-Trait Anger Inventory [72]

URICA

University of Rhode Island Change Assessment scale [73]

VBBA

Need for Recovery Scale (in Dutch) [74]

WAI

Work Ability Index [75]

WAIV

Work Alliance Inventory [76]

WAPGAR

Work APGAR – modified [77]

WCQ

Ways of Coping Questionnaire [78]

WEJS

Work Experience and Judgment Scale [79]

WHO-DAS

WHO-DAS [80]

WHO-QOL

WHO Quality of Life Measure- BREF [81]

WLQ-16

16-item version of the Work Limitations Questionnaire [82]



Table 20.3
Identified PRQs for each ICF category of the brief ICF Core Set for Vocational Rehabilitation











































































ICF category code

PRQs containing the concept of the ICF category on the first column

d155

COPM

QOLS

CWPP

SERS

DMQ

WEJS

d240

DMQ

STAXI

ISEL

WEJS

JSQ

WCQ

OMPQ
 

d720

BORRTI

PANSS

CWPP

SERS

LSI

STAXI

d845

COPM

MHLOC

DMQ

OMPQ

HAT-QOL

SAS-SR

ISEL

SCISCE

LSI

WAI

MSQ
 

d850

ADS

WEJS

ASI

CWPP

BDI

OMPQ

BQ

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Sep 25, 2016 | Posted by in PHYSICAL MEDICINE & REHABILITATION | Comments Off on Survey of Patient-Reported Questionnaires Using the ICF as a Reference: An Illustration Using the ICF Core Set for Vocational Rehabilitation

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