Life Care Planning After Traumatic Brain Injury




A life care plan is a detailed and comprehensive analysis of impairments, realistic needs, and associated costs relevant to providing a lifetime of care to patients. Physicians have a central role in advising life care planners. Within an expertly prepared life care plan, issues must correspond directly with proposed goods and services. A life care plan must clearly cite all relevant caregiver sources and rely on scientific evidence. The central tenets of a life care plan and the ethical and professional roles that physicians may play in the context of traumatic brain injury and a life care plan are reviewed in this article.


Key points








  • A life care plan sets out the full extent of the acquired impairments, likely complications, implications for independence, quality of life, and long-term care needs and then informs the parties about the rationale, including nature, extent, and frequency, for all the goods and services likely to be needed over a person’s life span and associated costs.



  • Whether from a clinical or litigation perspective, all life care plans should be founded in good science and preferably methodologically sound evidence-based medical practice.



  • For patients with traumatic brain injury (TBI), a life care plan requires systematic and thorough consideration of multiple dimensions of central nervous system functioning, including not only the more obvious problems of motor, communication, cognitive, and neuropsychiatric impairment but also other issues, such as pain, fatigue, and psychological responses to trauma, impairment, and disability.



  • Some of the major life care plan domains include home and/or facility care, medications, durable medical equipment, and vocational issues. Physicians and life care planners should be aware of common faux pas made in life care plans that can undermine the credibility of a plan as well as a professional’s expert testimony.



  • Clinicians—physicians or otherwise—involved either in the development of life care plans or in their critique should have a consistent methodology for reviewing the scientific credibility and foundation of such documents.






Introduction


TBI sequelae typically affect all aspects of a patient’s future life: domestic, recreational, vocational, social, and personal. Any good life care plan must accomplish several important goals for a patient with TBI. It must serve to fully and clearly inform all parties to litigation about the rationale, including nature, extent, and frequency, for all the goods and services likely to be needed over a person’s life span. It must also serve to fully and clearly set out the associated costs in adequate detail. A life care plan also offers a critically important basis for the person and his or her family to fully appreciate the seriousness of the acquired impairments, likely complications, implications for independence and quality of life, and long-term care needs, whether for clinical or litigation purposes.


For some individuals and families, a life care plan is the first and/or most comprehensive explanation of the traumatic condition and its lifelong implications. A life care plan can also be a reality check, however, placing limits on the expectations that claimants and families may develop in regard to the size and conditions of settlement. It necessarily follows that when all parties have a realistic appreciation of the nature of a condition, long-term implications, and associated realistic needs for goods and services as well as costs, early and reasonable settlements are facilitated.


Life care planners have a duty to develop a plan to assist attorneys, juries, and other health care providers in understanding the variety of special needs created by an injury and disability and how resources can be marshaled to meet those needs, including specialized care, assistive devices, medications, therapy, and environmental adaptation. In the course of preparing a plan, 1 or more of the attending physicians may be asked to work cooperatively with a life care planner in marshaling the medical evidence, identifying needs, and making lifetime prognostications. (For consistency, this article focuses on the nexus between the TBI life care planner and the physician, whether attending physician or independent expert physician. The authors recognize and acknowledge the important role of nonphysician health care professionals in life care planning, and it is appropriate for readers to infer that when physicians are referred to, it is reasonable to substitute or supplement this reference with other professionals, such as a psychologists, neuropsychologists, physiotherapists, occupational therapists, or nurses.) Alternatively, a physician who has had no prior therapeutic relationship with a patient may be retained as an independent expert by the plaintiff lawyer. Conversely, an independent expert may be retained to critically review a plaintiff’s life care plan for the defense or to help prepare a second life care plan by a planner retained by the defense. In either circumstance, it is essential that physicians understand their role within the context of both the clinical development of a life care plan as well as the medicolegal setting.


Inasmuch as a life care planner has more expertise than a clinician in developing such plans, it is entirely reasonable for a planner to point out areas of omission, deficiency, and/or impracticality in clinical recommendations. The physician’s role is one of expert resource and advisor to the life care planner: the physician and the planner are expected to act professionally at all times, offering impartial expertise—advocacy is never an appropriate role for an expert.


A life care plan should always be based on current standards of care and as much as possible on evidence-based practice. In a legal context, without the proper support from health care providers, a life care plan is not admissible in court. If a plan is not admissible, patients have no way of presenting vital evidence, and the result could be catastrophic: much-needed health care and ongoing support will never be considered by a jury and, thus, denied to a deserving patient.


A physician is asked by a life care planner (and later by lawyers) if the items included in the plan are reasonably necessary to manage a given injury. The physician must be guided in those opinions by conscience, professional judgment, clinical practice guidelines, and scientific evidence. The life care planner and the person with TBI depend on the physician being informed, thoughtful, deliberate, and scientifically consistent in arriving at opinions and then standing by them. A secondary consideration is that a physician will lose credibility in a courtroom for recommending an item as necessary, only to abandon that claim while under the close scrutiny or challenge of a cross-examination. The overarching goal of a physician should be to provide and recommend comprehensive, quality care for a patient. For these reasons, that goal can be achieved in litigation only by a physician who is competent, deliberate, strong, and resilient enough to withstand cross-examination.




Introduction


TBI sequelae typically affect all aspects of a patient’s future life: domestic, recreational, vocational, social, and personal. Any good life care plan must accomplish several important goals for a patient with TBI. It must serve to fully and clearly inform all parties to litigation about the rationale, including nature, extent, and frequency, for all the goods and services likely to be needed over a person’s life span. It must also serve to fully and clearly set out the associated costs in adequate detail. A life care plan also offers a critically important basis for the person and his or her family to fully appreciate the seriousness of the acquired impairments, likely complications, implications for independence and quality of life, and long-term care needs, whether for clinical or litigation purposes.


For some individuals and families, a life care plan is the first and/or most comprehensive explanation of the traumatic condition and its lifelong implications. A life care plan can also be a reality check, however, placing limits on the expectations that claimants and families may develop in regard to the size and conditions of settlement. It necessarily follows that when all parties have a realistic appreciation of the nature of a condition, long-term implications, and associated realistic needs for goods and services as well as costs, early and reasonable settlements are facilitated.


Life care planners have a duty to develop a plan to assist attorneys, juries, and other health care providers in understanding the variety of special needs created by an injury and disability and how resources can be marshaled to meet those needs, including specialized care, assistive devices, medications, therapy, and environmental adaptation. In the course of preparing a plan, 1 or more of the attending physicians may be asked to work cooperatively with a life care planner in marshaling the medical evidence, identifying needs, and making lifetime prognostications. (For consistency, this article focuses on the nexus between the TBI life care planner and the physician, whether attending physician or independent expert physician. The authors recognize and acknowledge the important role of nonphysician health care professionals in life care planning, and it is appropriate for readers to infer that when physicians are referred to, it is reasonable to substitute or supplement this reference with other professionals, such as a psychologists, neuropsychologists, physiotherapists, occupational therapists, or nurses.) Alternatively, a physician who has had no prior therapeutic relationship with a patient may be retained as an independent expert by the plaintiff lawyer. Conversely, an independent expert may be retained to critically review a plaintiff’s life care plan for the defense or to help prepare a second life care plan by a planner retained by the defense. In either circumstance, it is essential that physicians understand their role within the context of both the clinical development of a life care plan as well as the medicolegal setting.


Inasmuch as a life care planner has more expertise than a clinician in developing such plans, it is entirely reasonable for a planner to point out areas of omission, deficiency, and/or impracticality in clinical recommendations. The physician’s role is one of expert resource and advisor to the life care planner: the physician and the planner are expected to act professionally at all times, offering impartial expertise—advocacy is never an appropriate role for an expert.


A life care plan should always be based on current standards of care and as much as possible on evidence-based practice. In a legal context, without the proper support from health care providers, a life care plan is not admissible in court. If a plan is not admissible, patients have no way of presenting vital evidence, and the result could be catastrophic: much-needed health care and ongoing support will never be considered by a jury and, thus, denied to a deserving patient.


A physician is asked by a life care planner (and later by lawyers) if the items included in the plan are reasonably necessary to manage a given injury. The physician must be guided in those opinions by conscience, professional judgment, clinical practice guidelines, and scientific evidence. The life care planner and the person with TBI depend on the physician being informed, thoughtful, deliberate, and scientifically consistent in arriving at opinions and then standing by them. A secondary consideration is that a physician will lose credibility in a courtroom for recommending an item as necessary, only to abandon that claim while under the close scrutiny or challenge of a cross-examination. The overarching goal of a physician should be to provide and recommend comprehensive, quality care for a patient. For these reasons, that goal can be achieved in litigation only by a physician who is competent, deliberate, strong, and resilient enough to withstand cross-examination.




Medical contribution to the TBI life care plan


Life care planners come from varied backgrounds, including nursing, rehabilitation counseling, psychology, medicine, occupational, speech and physical therapy, and social work. Each life care planner presents a unique set of professional experiences and knowledge of specific disabilities. As in any field of practice, some life care planners have extensive training in life care planning methodology and knowledge specific to TBI whereas others are generalist life care planners with little training and limited knowledge of TBI. A seasoned life care planner with extensive knowledge of TBI is able to guide the discussion with the physician to ensure full and adequate consideration of all areas of future needs. Ideally, standards of practice should be adhered to as with any health care discipline or scientific methodology.


For a physician working with a life care planner, it is important to understand the planner’s experience in developing life care plans for the individual with TBI. Conversely, the life care planner wants to understand the physician’s training and experience in TBI assessment and care. If the treating physician cannot provide the needed basis and support for the life care plan, an independent expert physician may be needed. The American Academy of Physical Medicine and Rehabilitation states that the broad medical expertise of physiatrists allows them to treat disabling conditions throughout a person’s lifetime.


In working with a life care planner, a physician is asked to consider areas beyond lifelong medical care and the prevention of complications. The life care plan also addresses issues, such as therapy and durable medical equipment–related services, in the context of attempting to preserve a durable outcome for an injured party relative to productive lifestyle activities, support services, equipment needs for safety and care, therapeutic recreation, quality of life, and impact of aging. It is important for a physician working with a life care planner to understand some of the basic concepts of life care planning. Life care planners generally function under a set of guiding principles that are built around the practice of rehabilitation. Philosophic tenets that form the foundation for life care planning are outlined in Appendix 1 .


A well thought-out life care plan may necessitate considerable dialogue between a physician and life care planner. Physicians consulting with a life care planner must understand not only the rationale for each specific recommendation but also the relationship between each item in the plan. Life care planning is multidimensional, because each recommendation potentially affects other recommendations and elements of the plan.


The range of future care needs varies greatly depending on the severity of the TBI. Regardless of injury severity, the methodology used to examine future needs should be the same across all life care plans. An advising physician must always avoid commenting on matters that fall outside that physician’s scope of practice. Instead, it is reasonable and necessary to defer to other clinicians (for example, a psychiatrist defers when asked for expected orthopedic interventions or neuropsychological testing frequency and follow-up recommendations). An advising physician must be aware of all recommendations from other specialists that fall within that physician’s scope of practice and must be prepared to comment, when appropriate, on causal relationship and medical necessity.




Life care plan domains relevant to TBI casework


When examining core components of a TBI life care plan, several critically important domains must be considered, including the following.


Home Care/Facility Care


The type and frequency of services required depend on the nature and severity of residual deficits. Services may include those from skilled nurses and unskilled care providers, life skills trainers, homemakers, and home/yard maintenance support workers. This section of the plan is typically the most expensive. Outlining the ongoing support needs of the individual with a TBI typically requires close collaboration between a physician and life care planner. Some individuals with moderate/severe TBI require ongoing home care to assist with a variety of essential services. Others with moderate/severe TBI may require long-term residential care because of the nature of their ongoing impairments, age transitions, loss of a caregiver, safety issues in the home or community, or other lifestyle changes. Such facilities or programs may provide the necessary supervisory supports, although the level of expertise provided by such programs and their per diem costs can vary significantly. It is not unusual to see several scenarios outlined within a life care plan ( Table 1 has example scenarios and their associated costs).



Table 1

Comparison of costs: home care assistance versus long-term support in a residential care facility



















Home Care Age/Year Initiated Through Age/Year Suspended Hours/Shifts/Days of Care Cost
Option 1: After brain injury rehabilitation. Home care assistance provided by a certified nursing attendant 42/2012–Life Ages 42–50
Average of 10–12 h per d × 7 d/wk
Ages 50–55
Average of 12–16 h/d × 7 d/wk
Ages 55–life
Average of 16–18 h/d × 7 d/wk
$16.50–$19.50/h
or
$180–$250/d for Live-in caregiver
Option 2: Long-term supported living in TBI residential facility 42/2012–Life 24/7 Residential living $450–$800/d


When analyzing family support and involvement in care, it is necessary to distinguish between the normal responsibilities of a spouse or parent and any additional forms of care or allocations of time that are related specifically to managing the consequences of the TBI. The specific type and amount of support necessary vary in each case and may change over time. Life care planners and clinical teams are encouraged to analyze probable risk factors and to establish viable long-term options. All cases are unique, and some may require creativity on the part of a planner and physician.


In some geographic areas, home health care services are limited and pricing is variable. In some instances, it is less expensive to hire a live-in caregiver who is paid a per diem rate as opposed to hiring a care provider paid by the hour. Depending on patient and family needs and the availability of services, there may be times when a private-hire scenario should be considered. Some families elect to independently hire private health care workers who may or may not reside in the home. Families who choose this course must be cognizant of the requirement to provide the live-in employee a private room and benefits, such as health and workers’ compensation insurance coverage.


Another area often not given adequate attention is assuring optimal safety and residential and community accessibility for individuals with a brain injury within the environment in which they are cared for. Accordingly, life care planners and clinicians should keep in mind the need for adaptive equipment, such as grab bars, shower chairs, raised toilet seats, ramps, architectural modifications (including ramps), vehicular modifications for those who can drive but use wheelchairs, smoke and carbon monoxide detectors for anosmic patients, and other possible recommendations that should be considered. Other factors that should be considered in a life care plan include appropriate accommodations for caregiver and family respite if an individual with a brain injury is cared for at home. Depending on the cognitive-behavioral and physical impairment issues relevant to a case, accommodations may also need to be made for arranging special transportation (eg, a modified van), lodging, and care when on vacations.


Medication Management


Life care planners consider the medications a patient requires at the time a life care plan is developed and explore likely future use of medications as recommended by attending or expert consulting physicians. Costing for medication is typically based on retail, nondiscounted prices and should ideally include quotes for both generic and brand drugs. If a more expensive drug of the same drug class is recommended, the clinician and life care planner should both be prepared to justify why that drug and not a cheaper one from the same class, including potentially generic versions, might not be as acceptable.


Durable Medical Equipment


Many persons with TBI rely daily on durable medical equipment (DME). By reviewing past purchases of the equipment, a life care planner can understand how often an individual patient has required replacement devices in the past. If such information is not available, the planner may use Medicare guidelines for DME replacement. Marini and Harper presented a study to empirically validate replacement values by surveying 101 assistive technology practitioners from across the continental United States. They analyzed data in terms of ranges, median life expectancy, and replacement parts for equipmen, and current price ranges for equipment, repairs, and maintenance.


Vocational Issues


Life care planners with training and experience in developing vocational evaluations are asked to opine on an individual’s ability to work. A thorough assessment may include a functional capacity evaluation, job analysis, and labor market surveys combined with consultation with other allied health professionals, including neuropsychology, psychology, occupational therapy, physical therapy, and speech therapy. For patients with TBI, the level of functional limitations affects the likelihood of return to work. Other issues considered include behavioral concerns, cognitive deficits, fatigue, and deconditioning along with altered balance, vision, hearing, attention and concentration, motivation, distractibility, and bowel and bladder control as well as general mobility.




Supporting recommendations with adequate science


A physician who is reviewing a life care plan for a patient with TBI should be aware that the plan’s recommendations must always follow current evidence-based literature. Where such evidence is lacking, recommendations should be based on published guidelines or consensus opinion based on local and regional community standards of practice. Personal experience as a justification for recommendations should be avoided because it typically increases the likelihood of a legal challenge (ie, Daubert challenge) and increases the potential that testimony on said opinions or even all testimony by that expert is excluded. Drawing solely on anecdotal evidence is a dangerous practice from a medicolegal perspective: most clinicians have had limited experience with cases specific to the issue in question and, beyond that and more important, the practice is unscientific with substantial room for various forms of bias.


Two levels of qualification are required of any expert testifying regarding a life care plan. First, the expert must be qualified generally in the area that he or she is opining on; and second, the expert must be qualified to substantiate—to the degree required under the particular jurisdiction’s substantive law—the need for each element of care provided in the plan. Typically, the court and triers of fact look not only to the life care planner for such foundation but also to the physician who has endorsed the specific medical recommendations. (It is uncommon, but not unheard of, for a physician to obtain certification as a life care planner and thus to be able to both prepare and endorse a plan.) Therefore, the expert who is analyzing the scientific foundation of individual recommendations within a life care plan should be familiar with legal evidentiary rules and the nature of clinicolegal opinions relative to how these are interpreted and weighed by the triers of fact.


Under the US Federal Rules of Evidence, witnesses may establish their qualifications as an expert by reason of “knowledge, skill, experience, training, or education.” Federal Rule 702 was written as a general grant of authority for the use of expert testimony and is, therefore, permissive in nature. Furthermore, Rule 702 stipulates that a witness who is otherwise qualified as an expert may testify in the form of an opinion or otherwise if (1) the expert scientific, technical, or other specialized knowledge will help the trier of fact to understand the evidence or to determine a fact in issue; (2) the testimony is based on sufficient facts or data; and/or (3) the testimony is the product of reliable principles and methods and the expert has reliably applied the principles and methods to the facts of the case. Skills or knowledge that may be drawn on are not limited to scientific and technical areas alone but extend to all specialized knowledge. Expert testimony is generally proper in any scientific field that has reached a level of general acceptance. Most courts have at least implicitly recognized that life care planning itself has reached such a degree of general acceptance as to be the proper subject of expert testimony. Thus, expert testimony is generally permitted in conjunction with a life care plan.


A lack of adequate factual foundation likely results in an expert’s testimony stricken as based on speculation. Such an issue may arise if, for example, a life care planner intends to testify regarding the cost of certain treatment, but no medical evidence has been proffered to indicate that such treatment is reasonable, necessary, or caused by the relevant accident or mishap (eg, substandard care). Such foundation objections likely are considered in cases where objections to a life care planner’s qualifications have been overruled (the general legal defense principle is to attack the legitimacy of both the message and the messenger). The speculative nature of a life care plan can also preclude its admissibility if the plan involves new or experimental treatments or novel theories of causation.


All opinions need to be stated with a degree of probability. Occasionally, the term, degree of certainty , is used by lawyers and judges; however, case law does not differentiate degree of certainty from degree of probability relative to a difference in statistical thresholds for the likelihood of the occurrence discussed. Both terms are used to indicate that an event is more likely than not to occur. More specifically, when stating something with a degree of medical probability, it simply means that the chance of the occurrence of that condition is greater than 50%. To make such statements, adequate evidence is needed. Unfortunately, many opinions of this nature are provided without adequate scientific foundation.


Individuals with a brain injury who are suing for damages (ie, claimants) have the burden of establishing that the pertinent admissibility requirements are met by a preponderance of evidence. The specific criteria for admitting scientific expert testimony explicated by Daubert are (1) whether an expert’s technique or theory can be or has been tested—that is, whether the expert’s theory can be challenged or refuted in some objective sense or whether it is simply a subjective conclusion that cannot reasonably be refuted or assessed for reliability; (2) whether the technique or theory has been subject to peer review and publication; (3) the known or potential rate of error of the technique or theory when applied; (4) the existence and maintenance of standards and controls; and, (5) the degree to which the technique or theory has been generally accepted in the scientific community. Not all of the specific Daubert factors can apply to every type of expert testimony. The Daubert challenge strategy is increasingly used to challenge both life care planning and medical professional testimony in brain injury cases. When an expert purports to apply principles and methods in accordance with professional standards, yet reaches a conclusion that other experts in the field would not reach, the trial court may reasonably conclude that the principles and methods have not been faithfully applied. In such cases, any step that renders the analysis unreliable also render the expert’s testimony inadmissible. This is true whether the step completely changes the reliable methodology or merely misapplies that methodology.


Scientific evidence is relevant when there is a valid scientific connection to the pertinent inquiry as a precondition to admissibility. It is of utmost importance to point out that ethically, medicolegally, and morally, if a clinician or life care planner is to testify regarding a claimant who is alive, then that individual has an obligation to directly examine the party involved in the litigation and not base testimony solely on review of the medical records. Peer reviews should be used internally by the requesting party, and such reviews should not be substituted for direct examination and/or serve as a basis for testimony. One exception to this rule is in death cases; however, in such situations, a life care plan generally is irrelevant, although there are always exceptions. In such death cases, issues of lost wages, loss of consortium (loss of consortium is considered a valid claim in the United States but is not recognized by Canadian courts), pain, and suffering as well as other issues might be relevant from a forensic and clinicolegal standpoint.


Ideally, unless a life care plan is authored by an appropriately qualified physician, which is rarely the case, the plan must faithfully cite the medical sources for all specific medical recommendations. In addition, the overall plan should be endorsed by a physician to provide additional bolstering to the life care planner’s opinions on medical necessity and the causal relationship with the litigated issues. When a life care planner can also justify recommendations with scientific publications that are methodologically sound or publications that summarize such data, such as reference textbooks, then the opinions are further supported and that much more incontrovertible.

Only gold members can continue reading. Log In or Register to continue

Stay updated, free articles. Join our Telegram channel

Apr 17, 2017 | Posted by in PHYSICAL MEDICINE & REHABILITATION | Comments Off on Life Care Planning After Traumatic Brain Injury

Full access? Get Clinical Tree

Get Clinical Tree app for offline access